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Re: Brain AVM
Posted: Sat Jan 23, 2010 12:57 am
by nextinline
Thanks Avril for your kind words. I have been to the hospital tonight and it is the most responsive I have seen him yet

. He knew who I was

and managed to open his eyes

and to communicate a little by moving his head

. He wants to talk but cannot do so as yet. He is a long way from being anywhere near fine (2 years the hospital are saying at least) however, it is the most positive it has been in the last three months since it happened.
Re: Brain AVM
Posted: Sat Jan 23, 2010 3:04 pm
by titania
It sounds like maybe he has turned a corner, so lets all hope he maintains this improvement, a day at a time. Still sending healing wishes.
Re: Brain AVM
Posted: Sat Jan 23, 2010 8:08 pm
by Irishdancer
Glad he is doing so well. I saw a program on t.v. A few months ago about a man who has an AVM had to raise a lot of money to have an operation to have the AVM glued so that it would not burst he had about 5 operations went throught them all with him he is fine now. Its not fare that he had to raise so much money to save his life
Re: Brain AVM
Posted: Sun Jan 24, 2010 9:38 am
by Hecouldshine
nextinline wrote:....the most responsive I have seen him yet

. He knew who I was

and managed to open his eyes

and to communicate a little by moving his head

. He wants to talk but cannot do so as yet. ...
So pleased to hear this after all this time. Thinking of him and you all for the long haul now. Hopefully that's the immediate emergency and operation period out of the way now ????

Re: Brain AVM
Posted: Sat Feb 13, 2010 1:42 pm
by nextinline
Just a quick update. Last weekend was dire as he was so ill and had to have an emergency operation. Saturday night was horrible as we had been told to expect the worst but I am pleased to say that he came through again (I think this is about 9 operations now). He will need more but he has had a much better week. Off to see him this afternoon. He must be one very strong boy

Re: Brain AVM
Posted: Sat Feb 13, 2010 1:54 pm
by Luckymum
He certainly seems to be a fighter thank goodness. Hope he can continue to improve

Sending lots of get well wishes xx
Re: Brain AVM
Posted: Sat Feb 13, 2010 6:03 pm
by *Cazzy-Lou*
Glad to hear he is still fighting. Thinking & praying for him.

x x x
Re: Brain AVM
Posted: Sat Feb 13, 2010 7:17 pm
by Genevieve
Positive thoughts from me too and praying he continues to improve - he is very strong isn't he.
Re: Brain AVM
Posted: Sat Feb 13, 2010 7:42 pm
by titania
You have all been on such a roller coaster I hope it settles down and he continues to improve.
Re: Brain AVM
Posted: Sun Feb 14, 2010 11:18 pm
by dawsum
What a hard time you are all going through. Thoughts and prayers continue to be with you, your nephew and the rest of his family.
Re: Brain AVM
Posted: Mon Feb 15, 2010 12:07 am
by GEORGIEROSE
god blessxxx
Re: Brain AVM
Posted: Mon Feb 15, 2010 11:25 am
by Hollywood
So sorry Nextinline that he is so poorly

What a battler he is. Praying he has the strength to fight this
Update on our cousin.
As you know she was recovering well but a 'time bomb' waiting to happen. Anyway, was called in to have the veins glued (op mentioned in Irishdancers earlier post). Had op a few weeks ago (think they do it through the groin), anyway came through it fine but then got the bad news it hadn't worked

Surgeon decided he was going to go in through the head this time and see if he could take out the AVM. He decided he would do it 4 days after the previous op. We were all petrified as you can imagine. 2 weeks ago she had the op. 4.5 hours later she was taken into Intensive Care and we didn't know what to expect. Recovered well from op. Then the news...surgeon has managed to remove the whole AVM

Full recovery expected.
We are thrilled. Saw her this week - out of hospital. Couldn't believe how well she looked. Massive headband on, but no wobbles, no stroke like symptoms. Following her 11 month old round the floor like any other young mum! A miracle. Astounded, but no more AVM. We are all totally shocked.
Praying that your nephew continues to fight this thing, and hope he improves and gets the miracle we just have

xx
Re: Brain AVM
Posted: Mon Feb 15, 2010 12:17 pm
by nextinline
Re: Brain AVM
Posted: Sat Feb 20, 2010 12:16 pm
by nextinline
Just heard that he has had another operation and that he has a double shunt put in. Hopefully this will be a step forward.
Re: Brain AVM
Posted: Sat Feb 20, 2010 5:36 pm
by missmoneypenny
How fantastic Hollwood - so happy to hear this.
Nextinline - I so feel for your family, he really must be amazingly strong and determined - will keep him in our thoughts and prayers xx